Lyme Life Monday ~Kaleidoscope Eyes

The latest disturbing symptom of Lyme for me is what I call “kaleidoscope eyes.” A portion of my field of vision becomes distorted and the image is superimposed over the rest of whatever it is I see. Just imagine looking through a child’s toy or a window, but one part of it is doubled and moving.

What Now?

I can’t correlate this to anything I’ve done. Thankfully, I can see it coming. It’s not sudden. It comes on gradually over a few hours and it has happened enough times now, that I am aware. So, I don’t drive or operate heavy machinery. 🙂

I couldn’t read this morning, so I went outside and cleaned up the yard. As unnerving as the vision problem was, I am determined not to let such attacks cause me to totally abandon all productivity.

I’m a firm believer in doing what we can with what we have available to us. If I cannot work on writing, maybe I can do laundry or something else. When my body hurts too much to move, I may do some writing. If I cannot do either, I listen to encouraging or informational speakers. Ther are no shortage of them on the internet.

Lyme can suck the life out of its victims, but I’ve been through so much, Lyme is just one more battleground. Kaleidoscope eyes cannot stop me from finding possibilities.

Lyme Sucks

Since I have been taking Coartem for a few months, I am sleeping better. That’s progress. The total zombie status was no place to stay. It kicks my butt for a few days after taking it, every two weeks, but it has stopped the episodes of intense overheating that were occurring around the clock.

Other things that have helped are BCQ for the headaches and joint pain, Citicoline for the brain fog, I took Valacyclovir for the shingles, but now I am taking Lysine and Lauricidin without an outbreak. I take some supplements that are supposed to be helping, but not discernably so, like fish oil, magnesium, a detox formula and of course the diet: low sugar, low carb, high salt, high fiber, all organic as possible.

All of these things constitute my protocol, but everyone is different and everyone has their own stages and degrees of what is attacking them at any given time.

I hope you are well. Remember to do what you can with what you have.

Grab every minute you have and make sure you are focused on what’s really important. Some days, I can only get online for a couple of minutes. So, I use that time to find someone to encourage. I give a lot of virtual (((hugs))). When I can, I keep the house or cook for my family. I might send thank you cards to legislators or write in a book or blog. I force myself to stretch and worship with movement too.

What Then?

Sow your seed in the morning, and at evening let your hands not be idle, for you do not know which will succeed, whether this or that, or whether both will do equally well. Ecclesiastes 11:6

This might be the new normal, but I will make it as extraordinary as I possibly can. I hope you will too.

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